Rachel's Journey

We'd love to know who's following Rachel on her journey

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May 13th 2016
10:58:21 AM
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November 16th 2015
06:02:27 PM
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October 1st 2014
05:04:04 PM
What is your name?  

Jill Larrner

Where are you from?  

Sacramento, CA

How did you find this website?  

Web Search

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Thank you so much for sharing Rachel\'s story through your blog! My son, Thomas is 16 and has had the same procedures that Rachel has--their clefts look very similar. It is comforting to hear other\'s stories, I just wish I had kept a journal of his progress like you have. I\'ve never even met you but I can confidently say--what an awesome mom you are!!! Rachel is a lucky girl. -Jill

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February 26th 2014
09:20:32 AM
What is your name?  

Cheryl

Where are you from?  

Arcadia, CA

How did you find this website?  

First found it when my son Elias was born with the same condition in 2005

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Hello Darcy,

I just thought I would see how Rachel is doing now that she is older. I wanted you to know that your blog really helped me when he was first born. It helped to know that the condition was manageable, and something that we would have to just get through as your family did. By your example, I made sure that Elias did not feel any different from his siblings, and that he was treated the same. In truth we all do spoil him as he is the youngest. I am happy to report that several of his teachers say that he is the happiest boy, and he definitely has his own swagger among the other kids at school. He is a competitive gymnast now, and has had 3 surgeries so far, with an expander and braces for the upper ridge coming up in the future. He may be out of gymnastics for those few months, but that will not stop him from pursuing his dream of becoming an olympian. So to all the other mothers out there that might read this, let your child enjoy life as s/he normally would. Of course there will be periods of time that life gets put on hold for a bit because of surgeries, but that doesn\'t define who the child will become, nor should it limit what they can accomplish. OK, that\'s enough from my soapbox. Thank you Darcy for providing this platform to share our journey as well. Continued success to Rachel in all her endeavors!

   
November 9th 2013
12:33:16 PM
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October 1st 2013
06:01:01 AM
What is your name?  

Debbie

Where are you from?  

Wisconsin

How did you find this website?  

Accidently, looking for other information

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I haven\'t read all through Rachel\'s journey, nor have I read all of the posts, but I do plan on doing this in the very near future. The reason for my post is to first commend you on an amazing journey, second to let you and all others commenting on your website to know I have been through the journey and now look at the past through adult eyes.

Each of us will handle our situation a little differently, but it still is one heck of a journey getting through all of the surgeries, the speech therapies, the dental work, the odd looks by others, the teasing my your fellow classmates, (I think it\'s now called being bullied). Each of you will have a different journey and you will grow because of that journey.

My childhood was full of what I described above, but in a different time. I was born in the early 60\'s, (yes I\'m old) and I continued to have surgery beginning at 11 days old, and my last repair was at 19 years of age. I had a total of 13 surgeries within that time. I wore the old silver/metal braces for 7 years and went through speech therapy throughout my years at school. Now, in today\'s world the process has come a long way for children born with clefts.

I would come home crying many days because of the teasing, only to have my parents tell me someday I will be a very special person. Their support was out of this world. I was their only child. I\'m hoping that in today\'s world that would have changed also, that today\'s kids are more accepting, I\'m not sure. I do know there is a lot of talk about being bullied within the schools yet. I hate that kids and adults can be so cruel.

So, what happened to me, well I ended up getting married in 1983, we have a daughter and son, both adults now and my daughter has blessed us with two amazing grandchildren. I am a nurse and currently in education, overseeing a nursing assistant program for adult students. Prior to education, I spent many years as a hospice nurse. There is much more to my journey, but I\'ve been too long winded already.

The reason for my post is I\'m willing to share my journey with any of you, provide support when you need it, remind you how it will be OK in the end and that there is a very special plan out there for you someday.

I\'m new at this posting stuff, remember I\'m old, so I apologize in advance if I didn\'t do it correctly. Take care.

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June 29th 2013
08:02:11 PM
What is your name?  

Rebecca

Where are you from?  

Michigan

How did you find this website?  

google search engine

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Hi my son who is now 7 was born in 2005 with cleft lip and cleft palate. He has had a total of about 10 surgeries to repair everything. He is going in October for his bone graft surgery. I have done my research for this, but still not really sure what foods I should feed him. He goes to U of M Motts Childrens Hospital in Ann Arbor. If you could email me, so I have you email address, so we could or I could ask questions that would be great. Thanks

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June 16th 2013
10:09:46 PM
What is your name?  

Hilleary

Where are you from?  

Texas

How did you find this website?  

Pinterest

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Our son was born with a unilateral cleft lip and palate. We did *know* (not conclusive, but suspected) he had a cleft lip from a sonogram done at 35 weeks gestation. I am so excited to have found information from a family who has gone before us. Rachel is adorable, and I\'ve cried reading your journey and seeing her transform. He is six weeks old now, and our first surgery is planned for 10-12 weeks, so a little over a month from now. Needless to say, this momma is getting anxious. Thanks for providing a great resource!

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February 14th 2013
02:29:43 PM
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December 13th 2012
09:04:21 AM
What is your name?  

Donna

Where are you from?  

Pennsylvania

How did you find this website?  

Google search

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Thank you so much for sharing your's and Rachel's story. My daughter's bone grafting surgery is scheduled for March 2013 and her plastic surgeon will be doing a nose revision at the same time. I was searching for pics of the nasal stents so she would see what she will have to wear for 1 month. We talked about post-poning until summer so she doesn't have to wear the stents at school but she says she doesn't care. She just wants the expander out so she can chew gum and eat popcorn again! Sounds like your Rachel and my Ava are very strong girls! I'd love to chat with you by email if you have time. Take care and enjoy your holidays!
Donna

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